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Archive for September, 2004

To all Fairy Friends of Aimee

Posted: Tuesday, September 14th, 2004

To all fairy friends of Aimee

You are right to call this wonderful circle ‘A Special Fairy Ring’ – I hope it becomes evermore inclusive

It has certainly touched our lives in a ways that I would not have been able to imagine – Aimee holds her part of the silver thread that connects you all – for my part I feel an honoured guest.

Alongside Aimee’s own reiki I have had some truly remarkable healing experiences myself in recent months – we are blessed to have met a gifted reiki master who has opened the way for healing for all the family and has brought some awareness of reiki to parents on the children’s ward where Aimee is being cared for. He has also taught us some chi exercises to help us keep our own connection with the universal energy – I feel a huge benefit from them and regularly do them with Aimee.

Aimee’s progress post transplant has been quite outstanding – she has positively broken every expectation that the medical staff had of caring for children pre and post transplant – it seems to me that whatever “book” Aimee is following in her recovery – it is quite different from the one the rest of us are using

Yesterday – only four weeks after her transplant she was allowed home for the afternoon – something I had been led to believe might otherwise have taken up to four months to achieve – it was a joy having her close again – even although she left her socks, shoes, coat, hat etc in a trail along the floor and quite soon thereafter the flat was full of noisy game playing.

She still has a long way to go – and there will be further difficulties to overcome I am sure – but looking at Aimee yesterday I saw my little girl again as she was at Christmas before she had her relapse. Having a bone marrow transplant was the last thing I ever wanted for her.- We will never be free of the leukaemia for its consequences will stay with us throughout our lives and we will live our lives differently that they might otherwise have been.

The greatest gift from Aimee’s Leukaemia – if there is one to be found – is the gift of friendship – for all the simple acts that take a moment to create – they create a magic that lasts a life time.

Our family has been in many dark and lonely places over the last few months – we are not yet in the full rays of the sun but there is without doubt great warmth from the affection that we have received and more light than we might have once believed possible.

To all of you for your prayers, thoughts, paintings and gifts of hope and encouragement, for sharing your reiki experiences with Aimee myself and our family – I hope you can share these precious moments and joy that you have wished for us.

love and light

from Rosie and Aimee

Letter to Fairies World

Posted: Tuesday, September 7th, 2004

Letter to Fairies World® from Rosie (Aimee’s Mum)

I had not realised when I began to share Aimee’s story with you at Fairies World that my words would touch so many people in such a profound way – it is only one account of living with childhood leukaemia – sadly there will be thousands more around the world – perhaps hearing how you have all rallied around Aimee will help others to see how they can help sick children that they know off
The internet when it works for something like this is a powerful bridge
of communication and understanding

6th Sept – Aimee Latest

Posted: Monday, September 6th, 2004

6th September 2004
Dear Friends

Just over three weeks after her bone marrow transplant Aimee is now well enough to move on from the sacred and special fairy den which we created for her in the lamina flow area of the Schiehallion Ward in Yorkhill Hospital

She has been remarkably well throughout given everything that has been thrown at her pre and post transplant and has experienced only a little of the side effects of the treatment that had been expected. She has continued to eat and drink a little and has been spared serious infection.

We kept the reiki sessions going through out and have learned a few tai chi movements to give her a gentle exercise along the way The staff have been delighted and astounded at her progress and a bone marrow test yesterday confirmed that there are a lot of cells circulating in her marrow. She still has a way to go and the next set of tasks involve keeping her infection free, moving her onto oral medicines and getting to our first trip out on pass – what a day that will be.

Her new room continues the fairy theme, this time we have focused on creating a bedroom in a fairy castle where it is very comforting to have all our fairies around us and where light and colour are important elements.

We continue to be grateful to so many folk at home and around the world who hold Aimee close in their hearts, thoughts and prayers – there are so many very ill children on the ward we hope sincerely that they too and their families are as fortunate.

Aimee – little miss mischievous – is now developing new ways burning of the gleeful energy that has gathered around – in her latest venture she is quizzing all the nurses with geography questions from a wonderful pop-up book of the world

We look forward very much to our first trip out which we hope is not so far away now

Sincere and grateful thanks
Rosie Butler – Aimee’s Mum